The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME*

*The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Wednesday, 4 January 2017

new article - from the University of Wollongong - Younger Onset Dementia A Review of the Literature to Inform Service Development

the latest American Journal of Alzheimer's Disease & Other Dementias
Full text articles and books are available to members of Alzheimer’s Australia NSW by emailing NSW.Library@alzheimers.org.au


American Journal of Alzheimer's Disease & Other Dementias

 Current Issue : Volume 31, Issue 8, December 2016

 
Janet Sansoni  (1Australian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia)
Cathy Duncan (1Australian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia)
Pamela Grootemaat (1Australian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia)
Jacquelin Capell (1Australian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia)

Peter Samsa (1Australian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia)
Anita Westera ( 1Australian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia

 2016; pp. 693–705
This literature review focused on the experience, care, and service requirements of people with younger onset dementia. Systematic searches of 10 relevant bibliographic databases and a rigorous examination of the literature from nonacademic sources were undertaken. Searches identified 304 articles assessed for relevance and level of evidence, of which 74% were academic literature. The review identified the need for (1) more timely and accurate diagnosis and increased support immediately following diagnosis; (2) more individually tailored services addressing life cycle issues; (3) examination of the service needs of those living alone; (4) more systematic evaluation of services and programs; (5) further examination of service utilization, costs of illness, and cost effectiveness; and (6) current Australian clinical surveys to estimate prevalence, incidence, and survival rates. Although previous research has identified important service issues, there is a need for further studies with stronger research designs and consideration of the control of potentially confounding factors.