The dementia Australia NSW blog *Younger Onset Dementia and ME*

*The dementia Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Tuesday, 8 November 2016

Dementia advocate Kate Swaffer has been named South Australia’s Australian of the Year for helping change the way the world looks at the disease.

Dementia advocate nominated for Australian of the Year

Swaffer was diagnosed with dementia just before her 50th birthday in 2008 but she refused to be defeated by it, instead striving to improve the lives of those who live with the disease.
She is the co-founder and chief executive of Dementia Alliance International, a non-profit global body that represents people with dementia and fights for individual autonomy and inclusion.
Since her diagnosis, Swaffer, from Wattle Park in Adelaide, has completed three degrees, written several books and has begun studying for her PhD.
poetry book by Kate Swaffer

Love, life, loss a roller-coaster of poetry

from Kate's blog
"...My first volume of poetry Love, Life, Loss, A Roller Coaster of Poetry is now available and you can order copies via my Contact Form Page. It is a beautiful hard cover book with 88 poems. Some are not for the faint hearted, but they tell some of the stories of my life. One poem (the 88th) was written for me by my best friend Jacinta, and I have included it because it encompasses our love and friendship beautifully. * if you are a memeber of Alzheimer's NSW you can borrow a copy by emailing

Great Read about Living with Dementia
Just one reader’s opinion, Professor Mary Radnofsky
Kate Swaffer’s new book, What the Hell Happened to My Brain? (2016) is the must-read, go-to reference for dealing with all kinds of dementia – from Alzheimer’s, Leukodystrophies, MS, or any neurological disorder. (It is also the best title of all books on the subject of dementia.)
This is the book you’d wished for, when you or a loved one was first diagnosed. It’s what we all need to finally help us articulate or understand how it feels to slowly lose what we’ve always taken for granted: the ability to multi-task, recall words, make decisions, manage money, organize our lives.  A former nurse, Kate had seen this many times. Then eight years ago, at age 49, she, too, was diagnosed.
So Kate has made this book more than you or I could have ever imagined – she not only opens her [still-remarkable] mind to offer her vast knowledge and caring spirit, she also provides over thirty chapters with practical answers your questions on living – and I mean really living well and beyond – dementia. Keep a pencil or highlighter handy; you’ll want to take notes and share these words!

Diagnosed with Alzheimers or Another Dementia    
By Kate Swaffer, Lee-Fay Low
This book explains the stages and symptoms of dementia, how it affects the brain, and how it affects the person and their families. It is a comprehensive guide to understanding and living with dementia - what to expect, what services may be required, how to cope with day to day challenges, etc. It describes current treatments and ongoing medical research, and will include first hand experience from people diagnosed with dementia, and will talk about what it is like living with Dementia.

email to borrow resources