The dementia Australia NSW blog *Younger Onset Dementia and ME*

*The dementia Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Monday, 21 July 2014

new journal article

Dementia “The international journal of social research and practice"
Towards living well with young onset dementia: An exploration of coping from the perspective of those diagnosed
1.    Gemma Clemerson 2.    Sue Walsh 3.    Claire Isaac
There is increasing recognition that dementia in people under 65 years represents a unique challenge to sufferers and services alike. However, by either ignoring this population or sampling them together with older adults, current research has failed to reflect this. This study explored the specific experience of living and coping with Alzheimer’s disease in younger life from the perspective of those diagnosed. Semi-structured interviews were analysed using interpretive phenomenological analysis, and four themes were identified: ‘disruption of the life-cycle’, ‘identity’, ‘social orientation’ and ‘agency’. The experience of living and coping with young onset Alzheimer’s disease was strongly situated within an individual’s social context. Most significantly, participants felt too young to develop the disease and felt out of time with age-related psychological tasks. Coping strategies that attempted to redress and normalise the life-cycle were identified. The contributions of the study are discussed in the context of the human development literature.
Full text articles are available to fee paying members of Alzheimer’s Australia NSW by emailing