The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME*

*The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Wednesday, 30 July 2014

A Carer’s perspective on Living Positively with Dementia | Dementia Daily





A Carer’s perspective on Living Positively with Dementia
Jenny Fitzpatrick spoke at the recent Living Positively with Dementia forum in Wollongong about her caring experience with her husband, Noel. Here is her presentation.

A Carer Perspective on Living Positively with Dementia

I am Jenny Fitzpatrick. I am married to Noel Hackett, a most extraordinary man, an exquisite human being and the love of my life, who was diagnosed with Younger Onset Dementia – Alzheimer’s disease – on 23 January 2009. He had just turned 59.

Alzheimer’s disease is an incurable, terminal illness – as you all well know.

To be positive requires RESILIENCE.

I think of resilience as bouncing back. It is not about not being knocked down, but about getting back up again and again and then again.

Living positively with dementia doesn’t mean denying the pain and grief. For me it’s summed up in this quote:

Life isn’t about how to survive the storm, but how to dance in the rain.

So today I am going to talk about how Noel and I “dance in the rain”: how we keep connected, engaged and live in the present.... read on 
 A Carer’s perspective on Living Positively with Dementia | Dementia Daily