The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME*

*The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Tuesday, 10 June 2014

In the June/July issue of Australian Journal of Dementia Care


 Care and management of younger and older Australians living with dementia and behavioural and psychiatric symptoms of dementia (BPSD)


Senate addresses behavioural problems - Chaired by Senator Rachel Siewert 26 March 2014 © Commonwealth of Australia 2014

Full report includes : LIST OF RECOMMENDATIONS 

Topics include: Dementia in Australia; Community care; Supports to keep people with dementia in the community; Adequacy of community care; Respite care for people with dementia; Meeting the needs of Behavioural and Psychological Symptoms of Dementia in residential care; Accreditation standards; Funding; Leaders in dementia-appropriate  facilities and care; Specialised dementia facilities? Committee view: best practice care; The dementia care workforce; Retaining skilled workers;  The use of restraints in dementia care; The rights of patients and considerations in using restraints; Chemical Restraints; Physical restraints; Guidelines for the use of restraints; Are restraints necessary? ;  Committee view; Younger Onset Dementia; Interaction between Acute-, Disability-, and Aged-care; Caring for people with younger onset dementia; Improving care for people with younger onset dementia; Committee view; Concluding comments; APPENDIX 1 - Submissions and additional information received by the Committee; APPENDIX 2 - Public hearings.

Younger onset dementia program ; from concept to reality


“After years of advocacy, Australians with Younger onset dementia now have much-needed support to navigate the health system and access information” Glenn Rees this article examines concepts such as ‘”single point of contact” , a broad role for key workers, a consumer directed approach and positive outcomes such as assisting clients in accessing a diagnosis and supporting the whole family and building capacity. The article includes client feedback. p8
These resources are available to members of AANSW - if you would like to receive them please email the Library on nsw.library@alzheimers.org.au