The dementia Australia NSW blog *Younger Onset Dementia and ME*

*The dementia Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Tuesday, 29 October 2013

By Us For Us series of guides

The By Us For Us© Guides (BUFU guides) are a series of guides created by a group of talented and passionate persons with dementia and/or partners in care. The guides are designed to equip persons with dementia with the necessary tools to enhance their well being and manage daily challenges. What makes these guides particularly useful is that they are created by persons with dementia and/or partners in care, for persons with dementia and/or partners in care.

Guides available online and in hard copy

These documents were produced at the University of Waterloo by the Murray Alzheimer Research and Education Program (MAREP), and are protected by copyright. However, permission is granted to individuals and facilities to reproduce specific pages for their own educational purposes and for not-for-profit purposes only.
Accessible web page versions of the guides are available below.
If you are a person living with dementia or a family partner in care and would like a portable document format (PDF) version of any of the guides, please contact Jessica Luh Kim for more information.
Hard copies of each guide can be ordered online, by downloading an order form and mailing it to MAREP with payment, or calling our offices to place an order. See order information below.

NEW! Role, Health, & Well-Being

Front cover of By Us For Us Role, Health & Well-Being guide.The Role, Health, & Well-Being guide is the second guide in the Partners in Care series - a series of helpful resources written BY and FOR partners in care of those living with dementia. This guide offers many tips and strategies to understand, support and maintain the health and well-being of partners in care. Positive stories are also shared to encourage all partners in care in their journey.
Role, Health, & Well-Being accessible version - Coming soon

Food & Mealtime 

Food and mealtime guide coverThe Food & Mealtime guide is the second guide in the Partnership Series, which incorporates the experiences of persons with dementia and family partners in care. Food is an essential part of living - it allows the body to function well. Whether shopping or preparing meals, or going to eat a restaurant to eat, it is important to acknowledge and accept changes around food and mealtimes for both persons with dementia and partners in care. This guide will present many strategies for adapting to the many changes associated with living with dementia.
Food & Mealtime accessible version

Living and Celebrating Life Through Leisure

Living and celebrating guide coverThe purpose of this sixth guide in the Person with Dementia series is to share with you some thoughts on living and celebrating life through leisure. Meaningful leisure can be a wide range of activities from enjoying coffee on your deck first thing in the morning to being involved with other people in a more structured and challenging venue. Activities that leave us feeling good are so important in contributing to a quality of life that everyone strives for. 
Living and Celebrating Life Through Leisure accessible version

Before/Early Diagnosis

Before and early diagnosing guide coverThe Before/Early Diagnosis guide is the first guide in the Partner in Care series - a series of helpful resources written BY and FOR partners in care of those living with dementia. This guide is meant to provide help and reassurance for those who are concerned about possible symptoms of dementia and provides knowledge about the diagnosis, assessment and testing process.

Before/Early Diagnosis guide accessible version
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Living and Transforming With Loss & Grief

Loss and grief guide coverThe Living and Transforming with Loss & Grief Guide, is the first guide in the Partnership series, which incorporates the experiences of family partners in care as well as persons with dementia. The guide is a practical resource that recognizes the experiences of loss and grief that come with the journey of dementia, and provides useful tips and strategies for acknowledging, experiencing and transforming with loss and grief. This booklet aims to guide readers through the ebbs and flows of loss and grief to a place of acceptance, peace and hope. 
Living and Transforming with Loss & Grief accessible version

Memory Workout

Memory workout guide coverThe Memory Workout Guide, the first guide in the Person with Dementia series, provides examples of cognitive exercises and it encourages persons with dementia to develop and maintain regular "workouts" for the brain so as to function better while engaging in enjoyable activities.

Memory Workout guide accessible version
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Managing Triggers

Managing triggers guide coverThe Managing Triggers Guide, the second guide in the Person with Dementia series, is a practical resource that outlines the main triggers experienced by persons living with dementia, and offers solutions for how persons with dementia and their partners in care can manage and alleviate these triggers. The guide focuses on managing triggers associated with social situations, verbal communication, changes of abilities and memory, and managing your environment and negative emotions.
Managing Triggers accessible version

Enhancing Communication

Enhancing communication guide coverThe Enhancing Communication Guidethe third guide in the Person with Dementia series, is a comprehensive resource that outlines the main challenges associated with communication as experienced by persons with dementia. It explores communication challenges that can occur with family and friends, in social situations, and when communicating with health care professionals. The guide provides practical solutions for persons with dementia and emphasizes the importance of using a wide range of communication strategies in order to make opinions, feelings and experiences known. It also suggests ways that family partners in care and professionals can enhance communication with persons with dementia.
Enhancing Communication accessible version
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Enhancing Wellness

Enhancing wellness guide coverThe Enhancing Wellness Guide, the fourth guide in the Person with Dementia series,focuses on how enhancing physical, psychological and emotional, social and spiritual well-being can help us live our lives to the fullest extent, even after diagnosis of dementia. The guide provides helpful tips for eating well, taking care of your body, being physically active, staying centred with yourself, staying connected with others, and living in peace, all of which are important in enhancing wellness.
Enhancing Wellness accessible version

Tips & Strategies

Tips and strategies guide coverThe Tips & Strategies Guide, the fifth guide in the Person with Dementia series, is a helpful resource that contains ideas and suggestions for living daily with an illness causing dementia. The guide provides additional memory "workout" ideas, tips for those in the workforce, and general tips and strategies for daily living.

Tips & Strategies accessible version