The dementia Australia NSW blog *Younger Onset Dementia and ME*

*The dementia Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Monday, 2 September 2013

Social Care TV: "Living with young onset dementia"

Social Care TV: Living with young onset dementia

Key messages for practice
1.Diagnosis of dementia may be slower, more difficult and potentially more devastating for younger people.
2.It is often then followed by a lack of appropriate support and services.
3.Living life as a younger person with dementia means still engaging with the world, having the opportunity to take risks and having new experiences.
4.Access to support that builds confidence, helps restore independence, and enables peer support is crucial.
5.Personal budgets may offer younger people with dementia an opportunity to get the support that is right for them.
What is the video about?
This film introduces Ian Grant and Sandy Reed, who were both diagnosed with dementia in their 50's. They describe their experiences of receiving such a diagnosis at an early age, and the lack of support that often follows. They are both now supported by the Forget Me Not Centre, which provides counselling and support to younger people with dementia and takes a reablement approach. This means that the support staff work alongside the individuals, help to break difficult tasks down into small steps, and encourage frequent practice until confidence in their abilities grows. The film also emphasises the importance of living life, taking risks and having new experiences, as well as the value of peer support.

Who will find this useful?
Social workers; care staff providing community based services for people with dementia; NHS and social care commissioners; people with dementia and carers; the general public; GPs and other NHS staff; and regulator