The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME*

*The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Monday, 30 September 2013

2 new articles ...


1). The Unique Experience of Spouses in Early-Onset Dementia

AM J ALZHEIMERS DIS OTHER DEMEN published online 2 July 2013

Francine Ducharme, Marie-Jeanne Kergoat, Pascal Antoine, Florence Pasquier and Renée Coulombe
Abstract
To date, few studies have examined the experience of spouse caregivers living with a person with early-onset dementia. Moreover, few support resources are offered to these family caregivers and fewer are still tailored to their unique trajectory. The aim of this qualitative study was to document the lived experience of spouse caregivers of young patients in order to inform the development of professional support tailored to their reality. A sample of 12 spouses of persons diagnosed with dementia before the age of 65  participated in semistructured interviews. Six themes emerged from their caregiver trajectories, namely, difficulty managing behavioral and psychological symptoms, long quest for diagnosis, nondisclosure to others and denial of diagnosis, grief for loss of spouse and midlife projects, difficulty juggling unexpected role and daily life responsibilities, and difficulty planning for future.


For the full text article members please email nsw.library@alzheimers.org.au
Kind regards Michelle



2). Side by side : a workplace engagement program for people with younger onset dementia

by Jacinta Robertson, David Evans and Tim Horsnell
Dementia 2013 12: 66




Abstract


This paper describes an innovative demonstration program called Side by Side that was initiated  to assess the feasibility of supported workplace engagement for people with younger onset dementia. Seven people with mild dementia work one day per week beside a work-buddy in a large metropolitan hardware store. Work-buddies are store employees who have undergone dementia training. Work duties are negotiated at the start of each shift and include restocking, plant care, assembling display stock and serving customers. All participants have been able to adapt to the workplace environment and some now talk about ‘their customers’. Family carers  have reported a positive impact on self-esteem and life satisfaction as a result of the workplace  experience. This evaluation of feasibility has exceeded all expectations and has demonstrated that it is possible to offer meaningful activities for people with mild dementia if an appropriate framework of support is provided.
 

For the full text article members please email nsw.library@alzheimers.org.au
Kind regards Michelle