The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME*

*The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Tuesday, 2 July 2013

YOUNGER ONSET DEMENTIA : A NEW HORIZON? NATIONAL CONSUMER SUMMIT


YOUNGER ONSET DEMENTIA
A NEW HORIZON? NATIONAL CONSUMER SUMMIT


“At first I hid and I didn’t want to come out, but then I did and I found that people accepted me... they knew I was different but they also knew I had lived in the community for many years... we have to do something to improve people’s understanding of younger onset dementia so they know it just doesn’t happen to people who are older”

* to read the full report click here


There are 24,000 people with younger onset dementia in  Australia. Yet, access to appropriate careand support is  extremely limited.  Alzheimer’s Australia, with the support of Nich and  Rosemary Rogers, the Lord Mayor’s Charitable  Foundation and the Commonwealth Government, held  a National Summit on 19-20 March 2013 to examine the  issues facing individuals with younger onset dementia,  determine current gaps in responses and develop  recommendations for the way forward in order to  improve the quality of life for people with younger onset  dementia and their families.  This Report provides a summary of the Summit and  describes the actions required to develop better  responses to the needs of people with younger onset  dementia, their carers and their families