The dementia Australia NSW blog *Younger Onset Dementia and ME*

*The dementia Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Tuesday, 23 July 2013

latest article

Experiences of persons with early-onset dementia in everyday life: A qualitative
Version of Record
- Jun 25, 2013

by  Anders Mo¨ ller
Nordic School of Public Health, Sweden; Ersta Sko¨ ndal, University Collage, Sweden

The small number of existing studies confirms that people with early-onset
dementia (EOD) need special assistance from the beginning and as the disease progresses.
There is a need to develop services to respond to the specific needs of persons with EOD.

To find out how people experience living with early-onset dementia, and to assess the
implications for practice and the development of further services.

One category, the process toward a dementia diagnosis, covered two subcategories;
describing  changes and being diagnosed. Another category fighting for dignity describes how the informants try to maintain their quality of life, covering two subcategories;
intrapsychic challenges and social challenges.
Health services should give persons with EOD the ability to maintain contact with society and their voices should not be overlooked.

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