The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME*

*The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Monday, 29 July 2013

An interesting site

 The Younger Onset Dementia Association Inc (YODA Inc)
... was established in June 2010 to support and inform people about younger onset dementia. This includes people living with the disease, carers, family and friends as well as interested community members, health professionals and key organisations. We aim to ensure issues and concerns are identified and advanced, whilst maintaining effective relationships with key policy makers, service providers and stakeholders.
Younger onset dementia falls into a grey area in terms of funding and service supports - because the person is under 65, should they be supported by disability services or should they be supported through aged care services, given that dementia is seen as an age-related illness? Current government funding for services means that people with younger onset dementia are not adequately supported because they dont fit neatly into the service description "box"!

2 books suggested on the site include:
Living with Alzheimer's and Other Dementias
 covers the needs relating to ‘After the Diagnosis’: Making the Diagnosis – Information and Support – Medications – Accommodation - Driving – Everyday Care – Finances – Medication and Health – Memory and Language Aids - Coming to Terms with the Diagnosis – Behavioural Change – Looking After Yourself – Key Resources – Accommodation and Respite – Legal Planning etc.
You, or someone you love, has been diagnosed with Alzheimer’s disease or dementia. Chances are, through your shock and alarm your mind is teeming with questions. What will happen to me? Does this mean my husband will have to go into a nursing home? Can I still drive? Is it OK for my mother to continue to babysit my children? Are there any pills that can help? And most of all, what on earth should I do next? This publication aims to answer all these questions as well as many others. It is almost impossible to take in or even touch on all that you need to know at the time of diagnosis. (Perhaps some questions only came to mind days after you had left the doctor’s office.) With this book the authors aim to fill in those gaps and provide you with some answers and suggestions. They hope that you will be able to use this book as a guide in the weeks and months following a diagnosis to aid you and your family in understanding dementia, coming to terms with the situation and planning for the future.

 AND


It's never too late to change your mind : the latest medical thinking on what you can do to avoid dementia
First our memories. Then our independence. Finally even control of our bodies. Dementia can be a frightening illness, first for the unsuspecting individual, and then for the often helpless family. That a lifetime of achievements, knowledge and experiences could be replaced one day by a state of infant-like dependency in an anonymous and incomprehensible world is an understandable fear. But there is good news! We can help to protect ourselves against the scourge. There are practical things that we can all do to mitigate against course of dementia. Using the latest research, It's Never Too Late to Change Your Mind explains just what dementia is and what causes it. And most importantly, what you can do to avoid it. Understand the importance of having a healthy heart – the link between vascular health and forms of dementia is paramount • Learn the link between diabetes and dementia and how the oxidation theory works • How can cholesterol and what we eat affect brain function? • Is there a link with hymocysteine levels? • How mental activity promotes brain growth – even in adults! • Use it or lose it – what mental activities are best? Avoiding the onset of dementia is a whole body, whole-of-life process. It’s Never Too Late to Change Your Mind explains how this works, what to do, and reassures us all that we can all take action before things go too far.

which can be borrowed be emailing nsw.library@alzheimers.org.au if you are a member of ALZ NSW library