The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME*

*The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Thursday, 23 August 2012

You are invited to take part in this family study organized through the Sydney Medical School, University of Sydney


The impact of younger onset dementia on the person and their family
You are invited to take part in this family study organized through the Sydney
Medical School, University of Sydney.

Purpose of the study:
To explore both the experiences and support needs for the young people aged between 10-24
years with a parent with younger onset dementia.
To gain the perspectives of parents with younger onset dementia and their carers about the
impact on family life.
To develop supports in the future for young people and their families with similar issues and
concerns.
How can you help?:
We would like to do a one off interview with:
Young people between the ages of 10-24 years who have a parent with younger onset
dementia.
Parents living with younger onset dementia.
Carers of people living with younger onset dementia.
The interviews:
These confidential interviews will be held separately for about an hour in a convenient place local to
you. The whole family does not have to volunteer for you to be included in the study. All expenses
will be reimbursed to people who participate.
We will ask you about:
Your experiences having a parent with younger onset dementia or being a parent
living with younger onset dementia
or caring for someone with younger onset
dementia.
Stories that help us understand the impact of younger onset dementia on family life.
What ideas you have about how families in similar situations could be supported.
Later in the study there will be an option for the young people between 10-24 years to attend a focus
group at a convenient place, which will take about an hour, food and drink will be provided
afterwards.
Your views and thoughts are important to assist in developing ways to support
families who have similar issues and concerns.

If you are interested in taking part in the study, or want to know more, please contact:
Karen Hutchinson on ph:(02) 9477 9127 or email: karen.hutchinson@sydney.edu.au