The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME*

*The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Thursday, 23 August 2012

Would you be interested in taking part in a research study?





The impact of living with younger onset
dementia on family life


Would you be interested in taking part in a research study?
Purpose of the study:
To explore both the experiences and support needs of young people
aged between 10-24 years who have a parent living with younger
onset dementia.
To gain the perspectives of parents with younger onset dementia
and their carers about the impact on family life.
To help develop supports in the future for young people and their
families with similar issues and concerns.
The Study:
A researcher will explain to you about what is involved and get your
written consent if you decide to volunteer.
A one off interview will be organised if you volunteer to
participate. The interview will take up to an hour of your time
The whole family does not have to volunteer for you to be included
in this study.
This study is strictly confidential.
There will be an option for the young people only to attend a focus
group later on.
All expenses will be reimbursed.
Your views and thoughts are important to assist in developing ways to
support families who have similar issues and concerns.
Thank you for your interest.
If you would like to participate in the study or would like more
information please contact the research officer, Karen Hutchinson
Phone (02) 94779127 or email: karen.hutchinson@sydney.edu.au