The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME*

*The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Thursday, 13 October 2011

A rally was staged by Alzheimer's Australia to demand greater awareness of, and funding for, a condition it says will be the third-largest cost to health and residential care by 2030.

From the ABC'sTranscript

LEIGH SALES, PRESENTER: We all know that people are living longer than ever with the advances in medicine and quality of living, but it means we're seeing more diseases symptomatic of old age including dementia. Alzheimer's Australia released new research today that shows how serious the challenges are facing governments, patients and carers as baby boomers move into old age. We can expect to see a 50 per cent increase in people diagnosed with dementia in the next decade, as Mike Sexton reports.
MIKE SEXTON, REPORTER: Although they didn't achieve the number, organisers of a rally today in Canberra hoped for 1500 people. That way they could show the number of people each week in Australia who are diagnosed with dementia.
The rally was staged by Alzheimer's Australia to demand greater awareness of, and funding for, a condition it says will be the third-largest cost to health and residential care by 2030.
ITA BUTTROSE, PRESDENT, ALZHEIMER'S AUSTRALIA: The role of Government to help us find the money. And we're very conscious of the fact there's a lot of demands on Government for money but unless we address this issue, the cost down the track will be horrendous...for the full story http://www.abc.net.au/7.30/content/2011/s3339222.htm

Kate Swaffer was busy with her career and family when, in her late 40s, she began suffering severe headaches that developed into what seemed like a form of dyslexia where her brain struggled to process information and words....

From her daily blog
'Hello and thank you to everyone who has responded to my story on the ABC 7.30 Report last night.

For those of you diagnosed with dementia, I am so very sorry to hear of your diagnosis. I would strongly suggest you contact the Alzheimer’s Australia office in your state, http://www.fightdementia.org.au/default.aspx."

Kate Swaffer's early onset of dementia is slowly taking away her memory, so she's documenting her condition and her feelings in both a blog and a video. She's prepared medical directions on how she should be treated if, for example, she loses the power to communicate or to swallow.
http://kateswaffer.wordpress.com/daily-blog/