Younger Onset Dementia and ME: Research Project on Service and Support Requirements for People with Younger Onset Dementia and their Families in NSW

The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME*

*The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Monday, 26 September 2011

Research Project on Service and Support Requirements for People with Younger Onset Dementia and their Families in NSW

Are you or your family member living with a diagnosis of younger onset dementia?

Would you like to participate in a valuable research project?

Alzheimer’s Australia NSW (AlzNSW) is conducting research with the Social Policy Research Centre at the University of NSW and UnitingCare Ageing for the NSW Government.

The research is about the experiences and needs of people with younger onset dementia and their families and understanding how these are different or unique compared to those of people with dementia at later ages.

The research aims to understand:

· Your experiences of accessing services and supports

· What your service and support needs are

· How services and supports can best meet those needs

How can you help?

We are looking for people with younger onset dementia and their family members/carers to interview.

We will ask you about:

· Diagnosis and living with younger onset dementia

· Your experiences with dementia services

· The types of support and assistance you need and would like to receive

Interviews will take no more than one hour and at a location convenient for you.

All participants will be given a gift voucher to thank them for their time.

Your views are valuable and will be used to inform recommendations to government and service providers about improving younger onset dementia services and supports.

If you would like to participate or want to know more, please contact the Alzheimer’s Australia NSW researchers:

Jo-Ann Brown - Email jbrown@alznsw.asn.au or 02 8875 4636

Kylie Sait - Email ksait@alznsw.asn.au or 02 8875 4641